Sue is a long term foster carer of a now adult daughter who has partial fetal alcohol syndrome.(pFAS). She is a founding member and current Chair of the National Organisation for Foetal Alcohol Syndrome and Related Disorders (NOFASARD)
Sue has lobbied extensively on both a state and national level to raise awareness about Fetal Alcohol Spectrum Disorders (FASD) and has been invited to be a member of, and has reported to, various national and state government agencies in Australia, as a recognised parent authority in this area.
Sue has also delivered FASD presentations/workshops to fostercarers, teachers, drug and alcohol workers, disability workers, mental health workers, midwives and other various community organisations throughout Australia.
In June 2006 Sue was awarded the Member of the General Division of the Order of Australia for service to the community through the establishment of the National Organisation for Foetal Alcohol Syndrome and Related Disorders, to Community Education and Reconciliation.
Sue will deliver a case study presentation at the National Acquired Brain Injury conference, to be held on the 26th and 27th September in Melbourne. Sue’s talk will cover the following issues:
Fetal Alcohol Spectrum Disorder Across the Lifespan
• NOFASARD and a case study
• Primary, secondary and tertiary conditions/disabilities
• The impact on the child
• Advocacy – Services and school
• Transitions to interdependence